What treatments are there?

Here we have categorised treatments in order with things at the top being best, and low down the worse.
Getting into basic colour codes. Green, Amber and Red.

Green it works, and is something all long covid patients should aim to do.

Amber, potential treatments that might work, there is a small amount of evidence for, and relatively low risk

Red, we know this doesn’t work and/or it has risks that outweighs any potential benefit. AVOID!

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This list will be continually updated as more evidence comes available. Please contact us for corrections, additions and sugested improvements.

What Works?

These are general lifestyle changes that definitely help your long covid symptoms.

This is an ordered list higher up the list are things that are more effective, lower in the green are still effective but a lower priority.

Prioritise

DO LESS.

Work out what is important, what can wait, and what you can stop doing.

On a good day do 50% of what you think you can do. This helps avoid burn out.

More Information

Rest

Plan regular rests during your day. 

Sit down and rest whenever you can, (Watching TV doesn’t count).

Try to stop and rest before you feel tired. Break activities down into smaller chunks.

Avoid Alcohol

Alcohol is a depressant, it will make you more tired, sleep worse, increase anxiety and depression, therefore likely make long covid symptoms worse. 

Hangovers + long covid = A sure fire way to a BAD day.

Alcohol is trap, it convinces you that it is short term benefit, but it only does you harm. Really this is true for everyone. With long covid it is even more important to avoid alcohol.

Improve sleep

Remove all screens from the bedroom, including your phone.

Try to set a regular routine and have a wind down time prior to bed.

Get more sleep, you probably need significantly more, now you have long covid

More Information

Diet

Eat a varied diet, mostly of fruits and vegetables. 

Don’t over consume calories. Everything in moderation. 

(Mediterranean diet is very close to optimal – lots of fruits, vegetables, nuts, legumes, fish, some meat, and heart healthy fats (like olive oil).)

More Information

Get moving again

Start slowly and build up gradually. Increase a little, if that is ok after a week or two, slightly increase again.

Short walks are now exercise, standing up more often and more steps per day is great progress.

Exercise at low rate where you are able to have a conversation. Get a smart watch to track your extrusion

More Information

What Might work?

These things have shown some promise, and might be worth trying with caution.

This is an ordered list more promising towards the top, nearly worth trying. Less potemntial towards the bottom

Paxlovid

There is weak evidence that some long covid is caused by residual virus in your system, so an anti viral drug might help.

You should take Paxlovid if you catch Covid again, (if you can get Paxlovid where you live)

One double blinded trial showed excellent results, for post fatigue. However, this was post covid fatigue, on average 3 weeks after negative Covid-19 test, not long covid (greater than 12weeks)

Low Histamine diet

A patient led study with 812 long haulers showed significant improvements for long haulers on a low histamine diet. This is not high quality evidence, but with some caution and planning this diet might be worth a try.

More information

Hyperbaric Oxygen

There is some weak preliminary evidence the Hyperbaric Oxygen a some short term benefit.

The main issue is the high cost, so only worth it if you can afford it.

More information

What to Avoid?

This is an ordered list, towards the top could plausibly help, but there is little to no evidence to support it34. 

In the middle is stuff that doesn’t work

Towards the bottom stuff does more harm than good.

Nicotine

Being touted on facebook groups, but no good evidence to support its use. Best avoided until better evidence comes to light.

One case study with four people

Naltrexone

Currently only very evidence that it is effective. One small study, observational, unblinded, with subjective measures, 

One very weak study

Acupuncture

Minor risk, but completely ineffective.

Acupuncture is Awful

Ivermectin

Significant risks involved and very little chance that it could work.

All evidence shows it is ineffective for covid and long covid.

The Ivermectin vs Covid Calamity
Contact me

This list will be continually updated as more evidence comes available. Please contact us for corrections, additions and sugested improvements.

What is long COVID?

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